Jacob has the most amazing blue eyes you've ever seen. His smile could melt anyones heart and you can't help but smile back. He has a sweet and loving disposition and his excitablity is contagious. Although he is behind developmentally, every milestone he reaches is heightened because it has taken him so long to get there. We are able to treasure the little things more and realize what a miracle it is that he is here to touch our lives everyday!
You are such an amazing Mother. I LOVE what you've put together here! I can't wait to see you guys!
ReplyDeleteHollie,
ReplyDeleteI am truly reading this and crying because I sometimes think my life is hard and I should be ashamed of myself. You have been through so much and Jacob is the most amazing child ever. I know he will have the most amazing life because you are a great mother and he has some awesome siblings. Let me know how I can help with sharing the website or anything else.
Thanks everyone! Please do share this with anyone you can. We are just trying to make people aware of Rare Genetic Disorders. There is very little support/help out there, so he/they seems to fall between the cracks..
ReplyDeleteHollie,
ReplyDeleteI am sooo glad you have this site!! I love to keep up with you guys. I wish I could be more help to you!!! Love and miss you guys very much! Keep up the good work
Karol