Inside My Head

   Sometimes I get on the chromodisorder.org website and read the stories on there. It helps me connect with other families going through the same thing and sometimes puts things into perspective. Alot of the families are dealing with the same things we are and some of them have it alot worse off. I hate reading updates that a child has passed from complications due to their genetic disorder. It makes me thankful that Jacob doesn't have any life threatening health problems related to his, but also makes me think about the future. I rarely think about it in relation to Jacob right now and try to take it one day at a time, but every now and then I do wonder what his limitations will be, how dependent he will be on us, when he will/will he ever be able to do certain things...Ben gets more upset about it when we are around friends that have babies the same age or younger than Jacob that are far more advanced than he is. Sometimes you don't realize how far behind he is until he is next to another child his age. We are kind of in our own "World of Jacob" right now. I try to take it day by day, but every now and then the reality of what might be creeps into my mind and I wonder if I have the strength for it. I think God gives us what we need to take care of our children.